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Caring for a Child With Trisomy 18 was the Easy Part; Getting Doctors to Care Was Much Harder

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Mary Kellett - published on 10/03/14

The way Peter died has left us with many unanswered questions. Was Peter the victim of the hospital’s futility of care policy? Did someone decide his care was futile because he could never be “cured?” Did someone make the decision to “let him go” because he wasn’t worth the resources and was just too expensive to care for?

I always prayed that Peter would die at home surrounded by his family. We feel we were robbed of a peaceful, dignified death for our son, and instead are left with questions and the same sad feeling of rejection and sorrow we have felt from the beginning of Peter’s life.

Peter was a tremendous source of grace, love, and happiness for our family and many others. We miss him terribly  and would have gladly taken care of him forever. We will forever praise God for blessing us with this precious child who taught us so much.

Mary Kellett is the founder and director of Prenatal Partners for Life, a non-profit ministry that offers support, information and encouragement to families that receive an adverse diagnosis before or after the birth of their child. Prenatal Partners for Life also strives to educate the world about the unique gift these children are to their families and communities. Mary and her husband Don have 11 children and 16 grandchildren. Their youngest son Peter who was the inspiration for Prenatal Partners for Life, went home to heaven in August 2011. PPFL has supported families in every state and 37 countries. For more information please visit www.prenatalpartnersforlife.org.

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